Mercies in Disguise: A Story of Hope, a Family's Genetic Destiny, and the Science That Rescued Them | 1 Edition

Compare Textbook Prices for Mercies in Disguise: A Story of Hope, a Family's Genetic Destiny, and the Science That Rescued Them 1 Edition ISBN 9781250064349 by Kolata, Gina
Author: Kolata, Gina
ISBN:1250064341
ISBN-13: 9781250064349
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Details about Mercies in Disguise: A Story of Hope, a Family's Genetic Destiny, and the Science That Rescued Them:

"[Kolata] is a gifted storyteller. Her account of the Baxleys... is both engrossing and distressing... Kolata's book raises crucial questions about knowledge that can be both vital and fatal, both pallative and dangerous." —Andrew Solomon, The New York Review of Books

New York Times
science reporter Gina Kolata follows a family through genetic illness and one courageous daughter who decides her fate shall no longer be decided by a genetic flaw.

The phone rings. The doctor from California is on the line. “Are you ready Amanda?” The two people Amanda Baxley loves the most had begged her not to be tested—at least, not now. But she had to find out.

If your family carried a mutated gene that foretold a brutal illness and you were offered the chance to find out if you’d inherited it, would you do it? Would you walk toward the problem, bravely accepting whatever answer came your way? Or would you avoid the potential bad news as long as possible?

In Mercies in Disguise, acclaimed New York Times science reporter and bestselling author Gina Kolata tells the story of the Baxleys, an almost archetypal family in a small town in South Carolina. A proud and determined clan, many of them doctors, they are struck one by one with an inscrutable illness. They finally discover the cause of the disease after a remarkable sequence of events that many saw as providential. Meanwhile, science, progressing for a half a century along a parallel track, had handed the Baxleys a resolution—not a cure, but a blood test that would reveal who had the gene for the disease and who did not. And science would offer another dilemma—fertility specialists had created a way to spare the children through an expensive process.

A work of narrative nonfiction, Mercies in Disguise is the story of a family that took matters into its own hands when the medical world abandoned them. It’s a story of a family that had to deal with unspeakable tragedy and yet did not allow it to tear them apart. And it is the story of a young woman—Amanda Baxley—who faced the future head on, determined to find a way to disrupt her family’s destiny.

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Hi my name is Santanu, I have a master's degree in applied mathematics from Trinity College(Dublin Ireland) ,with a minor in chemistry and physics. I am a CRLA ( College Reading and Learning Association) certified tutor and held the position of head math and science tutor at Oakland Community College. I have several years of experience in tutoring chemistry, math and physics. I have tutored students ranging from elementary school level to college level. My teaching style involves detailed explan ... Read more

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